With broad participation from the extended community of people with CP, caregivers of children and adults with CP, the medical provider community, and community advocates, Research CP sought to establish a deep dialogue about what questions were most pressing that could be addressed through high-quality biomedical research. The initiative produced a list of 16 top research ideas and a wealth of other important criteria for CPRN and other clinical researchers to prioritize for future research studies. The 16 research ideas fell into four high level categories of research interest:
- Comparative Effectiveness of Interventions
- Exercise, Physical Activity and Chronic Disease Risk
- Understanding Aging
- Other topics including Pain, Neuroplasticity and Quality of Life.
You participated in Research CP. Please tell us what you think of the paper and help us get the word out to other people with CP, their caregivers and to clinician researchers.
Michele and I are planning Research CP 2.0. This will kick off with a review of the existing agenda and a discussion about how to not only move that research forward but also how to develop a more specific agenda for some of the underserved research questions. Stay tuned for details!