Thank you for sharing your insight about cerebral palsy. It will be invaluable for moving research forward. We appreciate you joining MyCP and have some details for you on privacy, consent and research data:
Registration is required to join MyCerebralPalsy.org.
The information you enter here is private and will not be shared with other members without your express permission.
The Cerebral Palsy Research Network (CPRN)has access to the data for the purposes of research.
You will be asked to sign an informed consent agreement before your data is used for research or before you can participate in any studies.
All research data is stored at the University of Utah in its secure, Health Insurance Portability and Accountability Act of 1996 (HIPAA) compliant data center.
We hope that you find MyCP interesting, informative and educational and we appreciate your time and input.